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Son Inspires Texas Mother Hannah Lowe To Raise $2M For Research Into Rare, Fatal Genetic Condition

April 7, 2021. Summarized by summa-bot.

Compression ratio: 64.3%. 1 min read.

Texas mother Hannah Lowe is on a mission to raise $2 million for research into a rare form of muscular dystrophy that her youngest son suffers from called L-CMD.

HOUSTON (CBSDFW. COM) – Texas mother Hannah Lowe is on a mission to raise $2 million for research into a rare form of muscular dystrophy that her youngest son, a tow-headed boy named Austin with big, beautiful eyes suffers from called L-CMD.

Austin Lowe is 1. 5 years old and has a fatal, muscle-wasting disease called LMNA-related congenital muscular dystrophy (L-CMD).

(courtesy: L-CMD Research Foundation/ Hannah Lowe)

Austin, who is “mentally sharp, happy and resilient,” has found ways to adapt despite the muscle-wasting disease robbing the 1. 5 year old of the ability to hold up his head, eat by mouth, sit up or crawl.

L-CMD is fatal.

Lowe wants to break that statistic, not only for Austin but for all children with L-CMD.

She has started the L-CMD Research Foundation to fund the work of researchers and scientists who will develop treatments and a cure for L-CMD.

“Given that Austin is on the severe end of the spectrum, we cannot wait for the science to reach us; we must go seeking the innovative, most promising scientific technologies,” said Lowe.

The most pressing project, which could literally save Austin from childhood death, is the development of a gene therapy.

The effectiveness of gene therapy decreases as children grow and as the disease progresses; thus time is running out, according to Lowe.

The foundation’s goal is to raise the $2 million by Austin’s second birthday — “2 Before 2!

Here’s how Lowe says you can help: donate what you can, share the fundraiser within your networks, share their social media posts — IG: www. instagram. com/lcmd. foundation, Twitter: https://twitter. com/FoundationLcmd or Facebook: https://www. facebook. com/LCMD. foundation.

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